* you're 13, and you finally decide to spill the beans to your folks that you're bleeding from your intestines and you're terrified because you've been hiding it for a year, hoping it would miraculously go away.
*You're diagnosed with a chronic illness, relieved you have a diagnosis for the pain you've endured since elementary school, but heart-broken at the thought of being a sick, pill-popper you're whole life. Also, feeling like a 90 yr. old doesn't make anything easier- on top of medication side-effects.
* After much time spent in a hospital and much medication, you hold yourself together through high school and dream vividly of the future- of moving on and being happy with a career you've earned and enjoy.
*You get accepted to a great university and struggle through with your disorder and though times are rough, you're proud of yourself for sticking with it and keeping up with all your healthy peers.
*You're about to graduate and move on into the big world of graduate school or work...proud of yourself yet aching inside from the daily pain and frustrations of your disorder but you keep heading forward.
*then, you realize, that America treats it's citizens awfully..including it's young adults who are trying to gain educations to contribute to the economy. You've just been dropped off your parent's welfare fund insurance plan, a nice little loop-hole around the new 25 year old limit placed on insurance companies. See, if you're lucky enough to have parents who are with an insurance company, then you've got until you're 25 to get a job and buy you're own insurance, which even having a disorder with insurance costing $400/month may be doable then...but if you're family is with a welfare fund, you're on your own at 23.
*So, now you're 23 with a flared-up chronic illness that you've been diagnosed with for 10 years and you're still a "young-in" to a lot of folks. You definitely don't feel like one when you wake up every morning feeling like you're 80, and the problems you face daily are those that an 80 year old would (bowel problems, health insurance problems, money problems, body aching and tired..) It gets quite depressing. Then you get to wake up everyday knowing that no one gives a shit. In other countries, I would be treated now, maybe have to wait in a line but I'd be seeing a doctor and I'd have medication to myself from bleeding out my intestines. I'd be able to go to classes regularly and not be behind all the time. I would be young and enjoy my youth.
*Here are some options for you, the 23 yr. old with no insurance who has a pre-existing condition: go on a clinical trial which only lasts from months to a few years that you have a 50% chance of receiving saline instead of medication and if you DO get medication, the reason they're testing it is for side effects and results- sounds fun huh?
Another option is to try to receive funding from the maker of the medicine- have fun with that. One more option is to get help through medicaid- much easier said than done. If you're even approved, the most you'll likely get is enough to cover a broken arm or regular cold and flu checkups.
* So you're left to your bed to cry and feel like the world doesn't care and the people that DO care, can't do anything for you and it makes them feel awful.
*How can such a developed country leave it's young adults who are responsibly trying to make a life for themselves in such a mess? In such despair??
And this is just me...what about Doug? who has MS? Far worse than my ulcerative colitis...